Email updates

Keep up to date with the latest news and content from Clinical and Translational Allergy and BioMed Central.

Open Access Highly Accessed Research

Living with severe allergy: an Anaphylaxis Campaign national survey of young people

Allison Worth1*, Lynne Regent2, Mark Levy1, Carey Ledford2, Mandy East2 and Aziz Sheikh1

Author Affiliations

1 Allergy & Respiratory Research Group, Centre for Population Health Sciences, The University of Edinburgh, Medical School, Teviot Place, Edinburgh EH8 9AG, UK

2 The Anaphylaxis Campaign, PO Box 275, Farnborough, Hampshire GU14 6SX, UK

For all author emails, please log on.

Clinical and Translational Allergy 2013, 3:2  doi:10.1186/2045-7022-3-2

Published: 22 January 2013

Abstract

Background

The transition to adulthood can be particularly challenging for young people with severe allergies, who must learn to balance personal safety with independent living. Information and support for young people and their families are crucial to successfully managing this transition. We sought to: gather insights into the impact of severe allergies on the lives of young people; explore where young people go for information about anaphylaxis and what information they want and need; identify areas where further support is needed.

Methods

An online questionnaire survey of young people aged 15–25 years with severe allergies in the United Kingdom (UK) was conducted on behalf of the Anaphylaxis Campaign, the main patient support organisation. Participants were recruited mainly from the Anaphylaxis Campaign membership database and also via allergy clinics and social media. The study was funded by the Anaphylaxis Campaign’s In Memoriam Fund.

Results

A total of 520 young people responded to the survey. The majority had lived with severe allergies since they were young children; 59% reported having attended Accident and Emergency units as a consequence of their allergies. Only 66% of respondents reported always carrying their epinephrine auto-injectors; only 23% had ever used these. Few were currently receiving specialist allergy care; younger respondents were more likely to be under specialist care (34%) than those 18 years and above (23%). Respondents wanted more information about eating out (56%), travelling (54%) and food labelling (43%). Almost a quarter of respondents (23%) reported needing more information on managing their allergies independently without parental help. Managing allergies in the context of social relationships was a concern for 22% of respondents.

Conclusions

This survey has identified the information and support needs and gaps in service provision for young people with severe allergies. Healthcare professionals and patient support organisations, with the support of the food industry, can help to meet these needs.

Keywords:
Allergy; Anaphylaxis; Young people